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Palliative care in Neuromuscular Disorders
Delivered by Profs Tracey Willis and Derek Willis on December 16th at 4pm CEST.

"Neuromuscular disorders (NMDs) are characterized by progressive muscle weakness, leading to pronounced and incapacitating physical disabilities. Most NMDs are not amenable to curative treatment and would thus qualify for palliative care. “ de Visser M, Oliver DJ. Palliative care in neuromuscular diseases. Curr Opin Neurol. 2017 Dec;30(6):68

We feel our December webinar is essential to supply guidance and share best practices regarding this fundamental issue of patient care.


Tracey Willis is dedicated paediatric neurologist with a special interest in neuromuscular diseases, both Paediatrics and Adults. She is a part of the North West Network, and chair the West Midlands network (2017), as well as part of the Northstar and SMAREACH networks that set national standards; As part of the adult Northstar network and have been leading on the palliative care and have recently written a chapter for a book on palliative care considerations for neuromuscular patients and developed an e-learning tool for palliative care physicians on Neuromuscular conditions.

Derek Willis gained an Honours degree in Medicine at Birmingham University. He trained in the West Midlands in Palliative Care and General Practice. Currently he is Medical Director for Severn Hospice- which serves Shropshire and Mid Wales in the UK. His role includes working with the local neuromuscular services to look at palliative care for adults with neuromuscular disorders. He has helped write national governmental policy on this. He is a visiting Professor in Bioethics and Palliative care as well as holding a position at the UNESCO Bioethics dept at Edgehill University. He is treasurer for the Association Palliative Medicine – the national medical palliative care group in Great Britain and Ireland. He is also Associate Editor for the British Medical Journal of Supportive and Palliative Care. He is studying for a Philosophy degree.

Dec 16, 2021 04:00 PM in Paris

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